LE&RN INDIA CELEBRATES WORLD LYMPHEDEMA DAY
Dr S B Gogia introduced the concept and need for the observation of World Lymphedema Day during the Inauguration of the Palliative care conference
The formal inaugural function on 5th evening..
From left to right - Prof Sukdev Nayak, Prof S N Misra, Dr S B Gogia, Chief Guest Mr B H Sahu and MS of AIIMS hospital Dr Parida
The meeting was merged with the ongoing two day workshop for Palliative Care nurses on 5th and 6th March. Participants in the meeting were government doctors from Primary Health Centres across Odisha. We had additional presence of key functionaries of Programme for Human Development - India coming all the way from Kanyakumari District - another endemic zone in Tamil Nadu, India.
LE&RN INDIA CELEBRATES WORLD LYMPHEDEMA DAY
The session specific to Lymphedema started in the afternoon of 5th March 2017 chaired by Dr Sanghamitra Pati, Director, Regional Medical Research Centre, Bhubaneshwar with the following topics:-
Filariasis, a Malady for Odisha Dr Gogia, SATHI, New Delhi Pathophysiology of Lymphedema Dr P Bhaskar Rao Lymphedema resembles Chronic Venous Insufficiency
Conservative Treatment for Lymphedema Dr SN Mishra, Chidambaram Compression bandaging Arun Rekha (through video calling)
Online presentation by LE&RN India Chapter Chair Arun Rekha
A recorded Video message from LE&RN Executive Director William Repicci was
played to the audiences.
The live workshop was initiated. A patient with Bilateral Filarial edema was examined and the use of an Intermittent Pneumatic Compression Pump demonstrated on her. Another live demonstration was that of manual pneumatic pump by Dr S N Misra on a patient with post mastectomy Lymphoedema. MLLB was done and a compression stocking was demonstrated on her later during the inauguration.
LE&RN INDIA CELEBRATES WORLD LYMPHEDEMA DAY
Next day a formal workshop on Lymphoedema care was done by plastic surgeons, Dr Gogia, SATHI, New Delhi, Dr Sanjay Kumar Giri, AIIMS, Bhubaneswar and Prof SN Misra, from Chidambaram, Tamilnadu.
A patient with Bilateral Lymphedema was examined, and a Nodovenous Shunt was attempted and found possible as a small node draining lymph was found.
On the 4th day when her measurements were taken again and patient sent home
SATHI in the wake of the Tsunami Crisis offered its services through its professional’s team to OXFAM TRUST (India) specifically their representatives in Delhi namely Ms Gurinder Kaur and Ms Meeta Parti. Following a number of meetings and discussions a comprehensive plan was made to provide a comprehensive healthcare facilities to the victims. The specific responsibilities of SATHI were stated in a formal MOU between SATHI and OXFAM.
The responsibilities assumed by SATHI requires co-ordination and mobilization at different levels. In pursuance of the same objectives, Drs S B Gogia and M R Surwade arrived in Chennai on a filed visit to Tsunami affected areas in Tamilnadu. The following is the action plan for the visit. Meanwhile our team in Delhi lead By Dr Vidya Surwade and Ms Arun Rekha are co-ordinating the interactions between the two organizations.
Establishment of Telemedicine System
A. Location of camps run by OXFAM
Creation of Community Telemedicine Network
A. Build Capacity with sustainability in mind
A. Operational Cost recovery
What is the project?
Provision of eye equipment along with computers, connectivity and ancillary telemedicine facilities at fixed centres at block and sub block level. These are run by specially trained Ophthalmic assistants with connectivity to Ophthalmic Surgeons. The system provides
Project operations and components
Unlike previous projects, SATHI will own the project for three years. We are also attempting to introduce other telehealth, general health as well as IT components as a value addition. This will put the installed systems and training to better use and help to make it sustainable.
|A step towards Elimination of Lymphatic Filariasis||View Video|
|Sitapur Model for Morbidity Management||View Presentation|
|Camps held on 19th – 22nd November, 2015 & 22nd January 2017|
Lymphatic Filariasis (LF) is endemic in 51 districts of Uttar Pradesh, including Sitapur district. Here an NGO Sangtin, along with its field organization Sangtin Kisan Mazdoor Sangathan (SKMS), took up this issue due to the suffering of patients and the lack of treatment options. Their search led them to Dr. S.B. Gogia and Mrs. Arun Rekha Gogia, who have been working on the issue for decades as well as attempting to start Filaria Care clinics across India through their NGO called SATHI (www.sathi.org). Mrs. Arun Rekha operates a voluntary clinic within AIIMS Department of Surgery, where patients suffering from lymphoedema are taught self management through hygiene, exercise and compression
Sangtin representatives, on the advice of Dr. P. K. Srivastava at the National Vector Borne Disease Control Programme (NVBDCP), took up line-listing of LF patients. An informal survey in 13 villages yielded a list of 262 patients – 136 with hydrocele, 121 with lymphoedema and 5 with both conditions. With this list, Sangtin representatives met the UP Principal Secretary (Health), Shri Arwind Kumar, who promised full support from the Health Department. Next, a plan was developed for a camp on morbidity management with Dr. Satya Mitra, Director Communicable Diseases.
A preliminary meeting for arranging the camp was held on 3rd November between the above government officials and their team including, Dr Saxena DDG, Dr Mithilesh Supervisor Lucknow Division and attended by SATHI (Dr S B Gogia and Ms Arun Rekha) as well as Sangtin Representatives (Ms Richa Singh and Ms Surbala). On 4th November SATHI and Sangtin held a preliminary camp at CHC Pisawan with active help from its incharge Dr Bharati. 85 patients of all the 262 invited attended it and were examined as well as counselled on the next steps benefiting from the actual camp between 19th to 22nd November, 2016
While the Health Department agreed to make all the arrangements and provide medicines for the camp, officials said that they were unable to cover the cost of the compressive bandages, which came to about Rs. 2000 per patient. Sangtin representatives then approached the local MLA, Shri Anup Gupta, who expressed great interest in the camp and the broader goal of eliminating LF in his constituency. He supported the cost of bandages through the O.P. Gupta Foundation, set up in honour of his late father.
Other Related Links to our work in Lymphoedema and Cancer counseling
Partners in Healing
AIIMS Pilot Project
Concept note on limb care in peripheral areas
( Aided by Telemedicine)
Rotary Club of Delhi Safdarjang (RCDS) has initiated a project on management of post cancer Lymphoedema and other related problems in the limbs. In a series of articles starting with the current issue, we hope to Inform Rotarians on the need and rationale of such a project. This is a bid to enlist a support for funds as well as personal participation in the activities.
With progress in healthcare and improvement in death rates of many diseases like cancer, there is a real need to add the focus along with care of the dying to care of the living. And this means management of chronic problems many of them leave one with a feeling ‘I would rather be dead’
Most are related to an inability of being able to take care of one self. This is largely related to problems in the limbs.
1. Healthcare Technology Aspects of Disaster Planning – based on the post Tsunami Experience
Authors: Dr S B Gogia, Dr M R Surwade
Organization S.A.T.H.I. (Society For Administration Of Telemedicine and Healthcare Informatics)
Correspondence Address: 28/31 Old Rajinder Nagar New Delhi 110060
Telephone Number +91-11-25853090, 25852291, Fax +91-11-25860163
Presented by Dr S B Gogia
S.A.T.H.I. has been involved in implementing the Healing Touch Project which has been sponsored by OXFAM Trust India. This Project was started after the Tsunami disaster in Tamilnadu to bring the fruits of Telemedicine, a new thrust technology in Healthcare Informatics to the victims. Being a new field, more than expected problems were faced. However despite a delayed start (in May, this year), the project has managed to provide mental health support to the victims while they were at home.
This pilot project can show the way forward to extending the fruits of technology in post Disaster Management. For that to occur, this technology should be more widely based, awareness should be present. The systems should be existing and available for immediate use as and when disasters occur.
1.2 Introduction :
Healthcare Informatics is a new and upcoming specialization. It holds the promise of improving the healthcare scenario of our country through
We from SATHI have been working to provide a Telemedicine based Healthcare support system for the Tsunami victims. The project though still incomplete and under implementation shows promise in showing the way forward to managing disaster.
Project for capacity building of Healthcare workers in Information Technology
Dr S B Gogia
Low Cost Solution for High End facility
Introduction and Background
Doctors in India are overworked. Not only are they seeing too many patients, but they do not have enough supporting staff who could small jobs of counselling and documentation of their patients history, examination as well as reports. Computers can make their job easier and more efficient
IT in Healthcare so far has not succeeded as much as it can. One reason for this is the lack of suitable personnel who know both (Computers and usage of specialized medical software as well as are familiar with Medical terms and workflows.).
Doctors would like that the non essential and repetitive part of their work like documentation, maintaining the register, filling up forms with the patients name, age, sex etc to be taken over by secretarial staff. Ideally each form for a specialized test like X Ray or Biopsy (ie histopathology) needs to be accompanied by a detailed history and examination. However in practice, this is rarely done due to time constrains. A good and efficient EMR software e.g. Medic Aid which our sister organization is providing - can do that. But knowing what to click on and when has to be learnt for all the screens it provides and many of them are for use by a particular speciality or situation. Thus initial training and orientation to its use is required which again the doctors do not have time for.
SATHI has now taken the lead in bridging the gap through capacity building. We introduce Vocational Training for IT in Healthcare. Our efforts are targeted at youth from less privileged areas. Once the work force is ready in quantity and quality the growing gap will start filling
Many NGOs are working in urban slums and rehabilitation colonies to provide various types of vocational education to the local young crowd in an effort to make them employable. Two such NGOs we recently came across were EDUCAN at Madanpur Khadar in South Delhi and SAKSHAM BHARTI in Raghubir Nagar in West Delhi .
Among other very impressive activities, both are already providing computer training to the locals at extremely low rates.
We believe that this is an opportunity whereby we use the existing strengths of these organizations – in the form of availability of suitable facilities, staff and computers in a location team with youth from colonies which are yet to fully experience the fruits of development.
SATHI already has a panel of staff who can train the students already undergoing computer training at the above facilities. Just a little push to Medical Software is required. Since the persons are unwilling to pay, we are providing them the training at existing low rates. As and when a job offer comes, we shall charge a small amount from the employer and provide them these persons.